12
Feb
Author: susan // Category:
Little Livvy Ditties
This post is dedicated to Miss Olivia! If you are here at this blog, for the first time, it is because you received the postcard in the mail directing you here for new information regarding Miss Olivia. Please forgive the lack of staying in touch more often this last year, but most of you know, by now, that God has brought someone into my life to “love and to cherishâ€(His name is Charles Bennett). However, that has not stopped Miss Olivia from growing and changing from day to day, so onward with this update.
Were you aware of the fact that Olivia LOVES puzzles? It has consistently baffled those who are closest to her, the tenacity and the intensity to which she “goes at a puzzleâ€. A greater insight into my daughter has brought me to the conclusion that the reason she loves puzzles so much is because, she is one! She relates to them so well. Just as one piece falls into place, there is the challenge to go onto the next piece, to see where it shall fit. All because we are driven to see the “whole pictureâ€, to sit back and look at our lovely accomplishment. For years now, Olivia has been referenced to as a “complex little thingâ€, by her mother (that would be me of course). This picture of a puzzle really drives home this truth.
Puzzle pieces that fit:
• Olivia is two years, and two months free from debilitating seizures.
• Olivia is one year and six months free from all anticonvulsant medications.
• Olivia is one year and one month free from her two middle fingers stuck in her mouth.
• Olivia is now officially OUT OF HER SHELL! (Help…help…help)
Puzzle pieces that have not fit yet:
• Olivia’s weight has gone from one extreme to the other.
• Olivia’s insulin levels are WAY OFF!
• Olivia’s thyroid has permanent damage, therefore, Synthroid for the rest of her life.
This seems to be the deal, as I understand it
• The seizures and the seizure medications were masking what seems to be another problem, which relates to her original stroke. The hypothesis is that at the time of her stroke (which if you remember occurred in the central artery of her brain) damage to the pituitary and a vein leading from there to her stomach and her pancreas also took place. The medications used to control the seizures did not help, in fact it exacerbated the problem, thus the extreme weight loss. With these issues solved, we now see the underlying problem for what it is.
• Everything Olivia puts in her mouth, her body perceives it to be sugar, and pushes it into her fat cells, even if it is not sugar or fat. This is frustrating to say the least. She has leveled off and we are using medication to bring the insulin levels down. The pituitary and the thyroid are incredible organs that hold the rest of our system in balance, if those are not functioning properly there is real danger of overload on the rest of our bodies.
Prayer Requests
When you think of it please pray for Olivia and her family as we struggle to keep it all in the perspective that none of this has taken God by surprise. He is aware and He created her just as she is.
Pray for our strength, to resist a lighthearted attitude since the “obvious†has been solved. That we would seek to solve this with the same passion and fortitude, to which we tackled the seizure issues.
Miss Olivia, is scheduled to be re-assessed this spring, at school, since she is not under the “influence†of seizures and mind-altering medications. Although I do not foresee her changing placement at school, it could reveal a greater number of opportunities for her future. Please pray for God’s will and our humble acceptance of the outcome.
Thank you all so much for your prayers and love. We will be seeing most of you in a few weeks, so until then God Bless!